Maxim, an 8-year-old was recently diagnosed with adrenoleukodystrophy (ALD).
This rare genetic disorder affects the nervous system, and there is currently no cure. However, treatments like hematopoietic stem cell transplantation (HSCT) can help manage symptoms and slow the progression of the disease.
Maxim had his HSCT on March 9th, and 21 days after the procedure, he needs Defitelio, which is the only treatment that helps patients fight veno-occlusive hepatic disease (VOD) that occurs after transplantation. A course of Defitelio costs approximately $30,000 for one patient. Podari.Life pays for 3-5 patients every year, depending on needs and our abilities. With your help and support, Maxim is receiving the treatment he needs in time.
MONEY FOR MAXIM WERE RAISED AT OUR FIRST CHARITY ART AUCTION.